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Ethics Of Using Own Kin For Scientific Data Gathering Raised
January 19, 2009 9:32 a.m. EST
AHN Staff
Boston, MA (AHN) - The growing number of scientists using their own children as research subjects has raised ethical questions in the science community.
Deborah Linebarger, a development psychologist at the Children's Media Lab at the University of Pennsylvania, defended her use of her four children to study the effect of media on children because of the difficulty of getting subjects.
Linebarger is not alone. University of California neurology professor Arthur Toga used a magnetic resonance imaging machine on his three children to study brain changes. Massachusetts Institute of Technology neuroscience professor Pawan Sinha plans to place a camera on his baby's head to record the things the infant will look at.
Robert Nelson, director of the Center for Research Integrity at the Children's Hospital of Philadelphia pointed out the parent's role is to protect the child. "Once that parent becomes an investigator, it sets up an immediate potential conflict of interest. And it potentially takes the parent-child relationship and distorts it in ways that are unpredictable," Nelson told the New York Times.
But the polio vaccine was discovered after Jonas Salk tried it on is children, which critics said would not be permitted today under current ethical standards.
Because of Massachusetts leadership in life sciences, there are almost 1,900 trials which recruit for volunteers in the state, which prompted the Massachusetts Department of Public Health to release in December draft guidelines that would have an effect on the life sciences industry. It includes the prohibition among pharmaceutical firms to send gifts to health care professionals.
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